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 Yes ... One More! ... The Sophia Story!
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Bea
Keeper of the Western Door

The Kiss 2
Canada



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May 18 2002

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Posted - April 20 2003 :  9:54:28 PM  Show Profile  Click to see Bea's MSN Messenger address  Copy this URL to Link to this Reply
We'll say a prayer for her...She'll be fine!! I am convinced of that!

Hang in there guys!!

God Bless!

Carpe Diem
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Wilderness Woman
Watcher of the Wood


Young George Washington
USA



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Posted - April 20 2003 :  10:08:13 PM  Show Profile  Copy this URL to Link to this Reply
Prayers are on the way right now...
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Theresa
Bumppo's Tavern Proprietress


Theresa
USA



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May 17 2002

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Posted - April 20 2003 :  11:27:43 PM  Show Profile  Copy this URL to Link to this Reply
About to go to bed and will pray without ceasing. God bless you all.

Theresa
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Chris
Colonial Settler

Hawkeye II
USA



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May 25 2002

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Posted - April 21 2003 :  01:01:41 AM  Show Profile  Copy this URL to Link to this Reply
Add our prayers to all the others.
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hawkeye
Pioneer

Longhunter With Child
USA



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Posted - April 21 2003 :  07:47:32 AM  Show Profile  Copy this URL to Link to this Reply
You are all in our prayers... best wishes!
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Cherie
Colonial Settler

Bug
USA



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July 02 2002

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Posted - April 21 2003 :  09:15:26 AM  Show Profile  Copy this URL to Link to this Reply
Not only prayers, you are in my heart.

Support our Country, our President and our Troops
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securemann
Deerslayer


offer of peace
USA



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July 08 2002

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Posted - April 21 2003 :  12:13:15 PM  Show Profile  Copy this URL to Link to this Reply
We are praying.
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Pen
Colonial Settler



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February 03 2003

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Posted - April 21 2003 :  2:51:01 PM  Show Profile  Copy this URL to Link to this Reply
Hi, Rich,

Prayers/good energy coming up. Hold the fort!

Take care,

Pen
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Scott Bubar
Colonial Militia

Scott's Avatar
USA



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May 17 2002

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Posted - April 22 2003 :  05:55:48 AM  Show Profile  Copy this URL to Link to this Reply
Don't know how much the prayers of an old heathen will help, but you've got em.

~~Aim small, miss small.
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Jayne
Overseer of Ariel's Auction

Oak Leaf



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May 23 2002

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Posted - April 22 2003 :  11:44:42 PM  Show Profile  Copy this URL to Link to this Reply
Rich and Elaine,

Hope this is a minor set back and that Sophia will be back in her own little crib very, very soon. Hugs and positive thoughts being sent your way!

Jayne
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Christina
Deerslayer


Vampire
USA



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Posted - April 23 2003 :  11:02:01 AM  Show Profile  Visit Christina's Homepage  Send Christina an AOL message  Copy this URL to Link to this Reply
Just made a visit to the board and saw all that's been happening. Prayers are going up, Rich. God has not moved his hand from Sophia and will continue to hold her -- and you -- up through these challenges.

Christina




quote:
Originally posted by Jayne

Rich and Elaine,

Hope this is a minor set back and that Sophia will be back in her own little crib very, very soon. Hugs and positive thoughts being sent your way!

Jayne


See this face? This is the face of a woman on the edge.
Whoopi Goldberg, "Jumping Jack Flash"

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richfed
Sachem


King 1
USA



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May 13 2002

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Posted - April 23 2003 :  1:51:36 PM  Show Profile  Visit richfed's Homepage  Click to see richfed's MSN Messenger address  Copy this URL to Link to this Reply
Here's an update for all of you following along here ... the story I thought - or, had hoped - was over but refuses to go away:

To start with, the little one is relatively fine. Thank God! And, thanks to all of you. She does have - or had - a virus, undetermined, that may or may not have been either caused or "promoted" by her RSV inoculation about 2 weeks ago, or whenever it was. We don't know. The doctors don't know, but she did have a virus. The fever has broken, and the intestinal part of it has passed [literally] - they are basically just letting her ride it out & fight this thing, providing some respiratory treatments to facilitate her breathing by opening up the bronchial tubes, etc. As soon as the congestion clears, she returns home. Sophia is an unbelievable little trooper. She handles this all in stride & in relatively good humor. I have a special little girl here, if she can just have the chance to plant her feet firmly on the ground ... finally ...

Meanwhile, while there, she's had some tests/check-ups:

  • Eye Examine - to occur later today. I expect her to pass that with flying colors. It's obvious she sees well.
  • Swallowing test - she gags - dry heaves, basically, while & after feeding. At least some times ... we are trying to adjust the rate & frequency so that her little belly can handle it. Anyway, to be sure nothing was getting into her airways, she had this test. Failure would possibly have resulted in another surgical procedure to fix the last one. She passed!
  • Ultra-sound on her lower spinal cord area. Some dimples appeared there which could be indicative of problems, but, there were no abnormalities.


Basically, she continues to hit every bump in the road, but beats them all, one at a time.

As they say here: Bless its heart! [I hate that they refer to her as an "it," but I guess it's just a figure of speech. ]

Meanwhile, meanwhile ... Mom stays in Asheville because of all the care she needs [we are trying to reduce the amount of food, but increase the frequency - so, she eats every 2 hours right now. The staff there in pediatrics can't handle that. I wish they allowed her to go back to the neonatal intensive care unit (NICU), but alas ... no.] And, I stay at home presenting myself as a very poor imitation of Mr. Mom. Nobody gets any sleep, we're all worn out ... I'm using all my leave up rapidly, with no definite end in sight ... but, it's really about Sophia. It is she who suffers the most. We have to continue to remember that. She handles it all better than anyone!! She knows no defeat.

Can't go visit, cause the kids are mostly all home all day ... 5 of them , anyway ... and the big boys are never home, between school & work. So, I miss her and spend time staring at her pics and praying for her young life to finally right itself. I ask myself "how much more can she stand?" Really, I hate to be melodramatic, but it just seems so unfair for one completely innocent & pure little person to have to bear all of this ... it's all she's known. I simply want her to know some good stuff!

Anyway, that's the report. Despite my gloominess, it's really quite bright! The only thing is, we still don't know how much longer she'll have to stay. I'm just worn out in every way imaginable. Waaa ... waa ... waaa ... who's the baby, anyway?!?

The Nolichucky had nothing on this!

And, I never did get my Easter pic!

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Bea
Keeper of the Western Door

The Kiss 2
Canada



Bumppo's Patron since [at least]:
May 18 2002

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Posted - April 23 2003 :  2:01:43 PM  Show Profile  Click to see Bea's MSN Messenger address  Copy this URL to Link to this Reply
Thanks so much for the update on your little angel. I am happy to hear that she is on the mend!!! Thank God for answered prayers!

I can imagine that this is quite tough for the rest of the family and trying to be Mr. Mom can't be easy! Goodness, you'll need a vacation after that! :) Anyhow we'll continue praying for all of you that things will also go smooth at home!

Carpe Diem
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securemann
Deerslayer


offer of peace
USA



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July 08 2002

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Posted - April 23 2003 :  7:57:52 PM  Show Profile  Copy this URL to Link to this Reply
Hang in there guys, ya'll tough and things will be just fine.
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richfed
Sachem


King 1
USA



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May 13 2002

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Posted - April 24 2003 :  05:47:29 AM  Show Profile  Visit richfed's Homepage  Click to see richfed's MSN Messenger address  Copy this URL to Link to this Reply
Addendum: She aced the eye exam. The Retinologist says he's done with her. No problems!

Oh ... her hand/eye coordination is rapidly improving ... For those of you who've had children, she's at the holding-her-hands-in-front-of-her-face-&-staring-at-them stage. Much to her delight, she has discovered that the hands are part of her. She sees things and grabs 'em.

Unfortunately, it's all wires & stuff right now!
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Cherie
Colonial Settler

Bug
USA



Bumppo's Patron since [at least]:
July 02 2002

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Posted - April 24 2003 :  10:18:38 AM  Show Profile  Copy this URL to Link to this Reply
ummmm....wires and stuff...seems she will know what those are first anyway. Either the ones around her while in the hospital or those around her while her Daddy is holding her and typing on his computer....HEHEHEH....Hope she's back on your lap soon

Support our Country, our President and our Troops
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richfed
Sachem


King 1
USA



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May 13 2002

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Posted - April 26 2003 :  10:25:26 AM  Show Profile  Visit richfed's Homepage  Click to see richfed's MSN Messenger address  Copy this URL to Link to this Reply
Well, well ... Sophia is a-coming home today!

Amazing - unbelievable, really - how this little person has turned our [everyone's] entire life completely upside down.

But, Sophia, it's all been emphatically worthwhile ... you are one special little daughter & I'm planning on spoiling you rotten ... so keep that in mind when you're all grown-up. Everyone is not going to treat you this way!!! And, oh joy! The doctor says we can expect that this viral adventure might reoccur within the next year! Part of the territory, I guess ...

And, on that note - unless something utterly out of this world occurs, I'm going to end this saga ... If you'd like to share a last thought or message with her, please do it soon.

In a couple or three days, I'm going to lock the thread, print it, laminate it, and save it for Sophia RosaMaria to one day read - a neat little chronicle of her tumultuous early life.

Perhaps, I'll no longer be here when you do finally chance to read it, Sophie, but know this - I've never loved anything like I've loved you. You have touched me & taught me; you are my life's gift.


Papa
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Jo
Sweetser 4 Rep




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May 27 2002

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Posted - April 26 2003 :  11:40:52 AM  Show Profile  Copy this URL to Link to this Reply
Be well, Sophia, as I know you will!!

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Chris
Colonial Settler

Hawkeye II
USA



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May 25 2002

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Posted - April 26 2003 :  2:51:40 PM  Show Profile  Copy this URL to Link to this Reply
You are an incredibly strong girl, Sophia, a fighter. I know you will be successful in whatever you choose to do in your life. I look forward to hearing about you as you grow to adulthood.

With love, Chris
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securemann
Deerslayer


offer of peace
USA



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July 08 2002

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Posted - April 26 2003 :  3:07:35 PM  Show Profile  Copy this URL to Link to this Reply
You are one tough cookie little Sophia.You are also very lucky to have strong loving parents with a great faith in God who will see you through no matter what.God's love and parents love,what a combo! You will never go wrong.
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Wilderness Woman
Watcher of the Wood


Young George Washington
USA



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November 27 2002

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Posted - April 26 2003 :  4:28:35 PM  Show Profile  Copy this URL to Link to this Reply
Sophia, Our little angel of Mohicanland, it has been quite a journey... full of scary times, full of joyous times, and definitely full of miracles. You will never know how many people were praying for you, and for your family. You will never know how many people cried in front of their computers while reading the latest news about you. You will never meet many of us, but we feel that we know you and that you are a part of us all.

You are loved.
You are special.
You are a Miracle Child.
I believe that the Lord has very wonderful plans for you!
God Bless you, Sophia!


Joyce, also called Wilderness Woman.
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caitlin
Bumppos Tavern Patron


MMBrand
USA


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May 17 2002

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Posted - April 26 2003 :  5:08:30 PM  Show Profile  Visit caitlin's Homepage  Copy this URL to Link to this Reply
Sophia, you never cease to amaze us, but I'm sure you'll continue doing so....
Thank you being our bright spot in a time when the world seems so dark.
We look forward to hearing of your many adventures!
as always,
caitlin

Jack McCall: "Should we shake hands or something, relieve the atmosphere. I mean how stupid do you think I am?"
Wild Bill Hickok: "I don't know, I just met you."

"A nation with no regard to it's past will have little future worth remembering."
A.Lincoln

"Enjoy the little things, for one day you may look back and realize that they were the big things"
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Theresa
Bumppo's Tavern Proprietress


Theresa
USA



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May 17 2002

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Posted - April 26 2003 :  9:22:44 PM  Show Profile  Copy this URL to Link to this Reply
To Sophia ,

You have profoundly affected all of our lives here in Mohicanland. Thank you for reminding us the power of prayer. Thank you for bringing a smile on our faces. Thank you for being a shining light during a dark time. I have no doubt that God has a definite plan for you. You are a strong and determined player in this game we call life. I look forward to the day when we can meet. We all love you very much.

Claude and Theresa Williams

Theresa
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chasis_22
Colonial Settler

Mohican Brothers
USA



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April 19 2003

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Posted - April 27 2003 :  02:22:47 AM  Show Profile  Send chasis_22 a Yahoo! Message  Copy this URL to Link to this Reply
Wow you learn something new everyday on here! Congratulations Rich on the new arrival. I almost fell out of my chair when I read that you have 10 kids! Wow. My mum has six and I thought that was a lot. Being a newcomer on here and all I was wondering if any of your family goes to the Mohican Gatherings? None the less I am happy for you and excited to see everyone next year.
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richfed
Sachem


King 1
USA



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May 13 2002

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Posted - April 29 2003 :  06:15:14 AM  Show Profile  Visit richfed's Homepage  Click to see richfed's MSN Messenger address  Copy this URL to Link to this Reply
Yep, Rachel ... 10 of 'em ... and each special in their own way ...

Alrighty then, here's the final last update on Sophia!

Really, a wonder! I get to thinking that perhaps she was released from the hospital just a wee bit too soon the first time. After her second stay [where, like she did on the NICU ward, she charmed them all in pediatrics!], she is noticeably stronger & better. She laughs & smiles all the time, loves to be held, thoroughly enjoys all the fussing going on all around her.

Yesterday, she was like a little princess ... bathing & receiving her nebulizer treatment [her newest fad - she came home this time from the hospital with this contraption that blows medicated smoke for her breathing. Looks like a witch's brew to me!], crowd gathered around her ... she was loving every minute of it. And, she deserves every bit of pampering she can get.

Her voice is getting stronger, little by little, but her cry still sounds more like a whimper than a true cry - the cutest thing. I hate to keep boasting of this girl, but this thread has been a part of my therapy through this ordeal. Everyone - I mean everyone - falls in love with this girl. Everyone who meets her is charmed by her. She is remarkable, and quite "famous" at Asheville's Memorial Mission Hospital. At least on the 3rd & 6th floors! All the staff knows Sophia ... Literally, she had a stream of visitors during her stay there last week!

Image Insert:

23.77 KB
Sophia on April 28

This, I guess, is her farewell [for now] pic, as she retreats to a new life of privacy ...

One other thing ... it's been an eye-opener to finally get all the hospital's staff's real feelings on Sophia's stay at the NICU ward for those 6 eternally long months. They now speak more freely, and most of them now admit that they never thought she would make it. But for one time - and then only hinted at, back in January - that was never projected by the staff to us. They hid it well! To a man [and woman], they consider her a miracle. She was so close, so often ... just teetering at the brink of death's door. Every time I gaze at her, I think of how lucky we all are; I think of how frantically the hospital workers strived to keep her alive; I think of what could have been ...

She is our miracle, in the truest sense.

One nurse wrote an absolutely gut-wrenchingly beautiful letter - 3 pages worth - for Sophia to one day read. Sophia has so touched folks in that way!

Another recently recounted this to us:

As she went in & out of consciousness - her heart slowing down to dramatically, and dangerously slow levels; her breathing ceasing altogether - we had to bring her back so often. We got to saying that Sophia liked meeting Jesus so much that she kept wanting to go back & meet him again.

In due time, sweet Sophia ... in due time ...
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